You are so right Glen. It was pretty scarey at the time, lived in Germany and had to be aero-med'd back to the uk and then by ambulance from the private airport to GOS. Its a long story but he just did not develop properly in the womb. He had no opening at all for his back passage, so obviously it was urgent to get him to a hospital to deal with it. So he had an emergency op that gave him his colostomy. Have to say we had no problems with it. It was when it was reversed that the real problems started. He had very little control as he had very minimal muscles to control his bowel. He then had several years of urine infections, which they eventually found out was due to a small and tilted bladder, so he had a bladder enlargement where they used part of his bowel to make it larger and he also now has a metrophanof stoma which he catheterises through. Its amazing what these surgeons can do, the stoma is actually his appendix which they stitched to his bladder and to a tiny opening in his side. So he can empty himself properly, he can pee normally too, which apparantly is unusual but he is lucky that he just has to catheterise about 4 times a day. He has had it pretty rough with one thing or another but hes a great lad (27 now) and he is so caring and understanding of anyone with problems. He has to attend UCL London a couple of times a year for tests etc and will have to do this for the rest of his life.
Sharon
