Bless you both. Yes it has made him stronger. He had rough times at school etc. Not an easy thing to talk about with your friends. Hated it for him. To add to his problems both his vas derence (sperm tubes) were attached to his bowel, so that had to be operated on too. Now he is sterile, which I was quite open with him about from an age where he could understand. He has had in excess of 22 operations, lost count after a while, the last major one was for his metrophanof when he was 11. But I have to say being somewhere like GOSH it makes you count your blessings, I saw so many children with much worse problems than my son. But I have to say that when I found out about his problems I thought my life had ended. It was very frightening. I was only 19 when I had him and away from my family. But I am one that needs to know all I can about any condition then I can understand it. I also helped other mums with babies that arrived at GOSH that had similar conditions. I even got to donate breast milk to help prem babies, so that helped me think I gave something back.
He also has a tattoo on his inner wrist with the GOSH baby face with the inscription 'masters in their field' only recently had it done, needless to say I just erupted into tears when I saw it. He knows that they saved his life and it was something he felt he needed to do.
Sharon x
