i feel for you
have you thought about a medical bracelet with the details of your illness and medication when its sorted, i was told to get one as its an easy way to show your illness and for people to accept it, well i was told something along those lines, the other reason for mine was due to the many meds and the high dosages i take if i had an accident for paramedics to see. i havent got one though as jewelery scares me

i get paranoid its to tight or its going to get caught and rip part of my body off

dont worry about being positive/negative here, your more likely to document the downs than the highs, i think we all are, i know i do. your not getting people down.
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A medical bracelet is a really good idea, I have just bought one online and they will engrave it with all my details for me.
I usually wear jewelery lots and I have got a beaded medical bracelet so it will look like a normal bracelet but will still have my details.
thank you all for your comments and what a lot of feedback so I appolagise for not replying to them all, but you are all really great for feeding back with your thoughts and advice.
smirfy