Hi

[Karian]

Hi everyone,

Hope you all had a peaceful and quiet Christmas,

I have been poorly recently, aswell as my mental health my physical health has plummeted.
I have always had irregular cycles and only maybe had 2-3 a year and even then it was 2-3 days of spotting then gone.
but since mid November I have been bleeding extremely heavily with clots ect, Saw my gp who wasnt really overly concerned just thought it was a heavy clearout and would die down itself soon, but gave me some tablets tranexamic acid to try and lighten the bleeding but a few days later I had what I can only describe as a feeling of my waters breaking but it was just a gush of fresh blood, saw the emergency gp they have done a pregnancy test which was obviously negative, and gave me norethisterone tablets to stop the bleeding and give me a few days rest from it as it was draining me and give me some chance to get back on my feet, also told me to see my gp for a blood screening to check for iron and vitamin deficienty's etc.
I got blood taken in the middle on December, and the results came back I had to make another appointment my liver test was abnormal, asked the usual to you drink a lot, I drink on average 1 bottle of jack daniels a year, and even then I usually have some left. so they took more bloods to screen for other things and have to go for a liver scan (on 11th jan)
I am still bleeding extremely heavily and draining me physically saw my looney psychiatrist the week before Christmas and he dismissed my feelings, I asked him to change my meds as the amitriptyline can affect the liver and would prefer one that didnt, but he said most cause liver abnormalities and he would rather I stuck with them so he upped my dose from 75mg nightly to 100mg and also gave me 2mg diazepam to take twice a day.

Had my OT today and she doesnt want to discharge me even though I have said I dont want to even think about "steps and goals" she wants to keep me on for support, but she has widened the gap from fortnightly appointments to 3wkly.

A huge part of me is relieved that maybe someone up there is answering my prayers, and taking the guilt off me for leaving and they are making me leave due to some medical condition.
I have severe abdominal pain and struggle just to get out of bed.

I just hope next wednesday the scan shows something that can give me a reason as to what is going on.

anyway, I am still around in some capacity for now x

[Zaf]

How awful for you Karen, I do hope they find out the cause very soon xx

[Sweetpea]

 &*( thinking of you karen.

Take care

Sharon x

[Karian]

thank you both, I am just shattered but fingers crossed they can sort it soon as I seriously am so tired.

[Ezel]

Thinking off you.

[Lol]

Karian it's nice to hear from you I wonder how you are doing from time to time. This sounds really draining and traumatic! I hope it ressolves for you soon.

Take Care
Lol x

[Munchroom]

Oh Karen - this sounds absolutley awful, I'm so sorry you are having to go through this aswell as everything else  &*(

I was on Norethisterone tablets over Christmas because I suffer from incredibly painful and heavy periods. The doctor was very concerened that they (the tablets) may have made my mood plummet even further - which they may have done, at the moment its hard to tell! Are they working for you? Sometimes just a small amount of respite from it can be a life saver! I have to posibbly go for tests and ultrasounds for mine  not looking forward to that.

You have my every sympathy because I know how draining it can be for a few days - never mind continuously. I really hope the scan goes well and gives you a fair idea of whats going on - sometimes not knowing whats causing it can just make things 10x worse.

xx

[Karian]

thanks everyone, yeah it is draining and it has made my mood non-existant as I am just so drained I dont even have the energy to be low.

I have never ever suffered anything like this before, and it scared the crap out of me, it is very painful but I can handle the pain it is just the blood loss that is the worst,
the respite over the holidays did help but felt like I was just getting back to feeling alive again when it started again.

yeah they unknown does freak you out more, They have done bloods twice and it has shown liver abnormalities so they are scanning that but I fear the worst as
I have lost a lot of family to the C word and on of them my uncle it was his liver.

it is just the worst feeling in the world, I also have a big of a chesty cough just now too and any time I cough their is another flood,
I am so self concious to as I dont want the boys to worry, Ian knows and he actually tried to get me to go see the emergency gp tonight but
there is no point as they arent going to solve it just try and stem it, and if thats the case they are right that it is just a clear out I would rather just get it over and done with, let it all come just now and I can get back to some sort of normality.

Big hugs Nay, to cope with that month in month out must be horrendous, my mum used to have heavy bleeds but has lots of medical conditions including DVT's and is on medication for life for them, she got a mirena coil fitted and has been fine since but here heavy bleeds like you Nay were monthly and lasted 6-8days.

Anyway just hope on Wednesday they can diagnose something and start treatment x Thanks everyone x

[Zaf]

Thinking of you xx

[Karian]

hey wee update on me

I had an awful bleed Friday in to Saturday so with a lot of anxiety I went to the out of hours gp on Saturday morning
she done a rough check and because her sources were limited she felt with the amount of blood I was losing and that my heart rate was really fast
I was better to be referred over to the A&E dept and see a gyn consultant, spent most of Saturday afternoon being prodded and pinned, and evenutally
they decided I needed to stay in for a womb scan on Sunday, was put back on a loads of medication to stop the bleeding Norethisterone, transexamic acid, mefenamic Acid, plus paracetamol. on top of my amitriptyline, propanalol and diazepam.  The bleeding lightened a lot overnight and when they done the internal on sunday morning the head consultant couldnt see much due to the blood and the ward I was in wasnt best equipped for him to do further checks but he did say what he could see he is sure I have cancerous cells in my womb, I was fine and took it on board thinking worst case senario whip out the womb and other bits and I am fine, but with the liver scan also needing done, I am now very aware I could be looking at a secondary cancer also.

I got my liver scan on Wednesday and from where I was lying I couldnt see anything, and the radiographer had his poker face on telling me the results will be sent to my gp usually around 7 days.
I got my appointment for the gyn clinic to get a colposcopy on the 18th, he also wants to do a colonscopy and laparoscopy aswell as some biopsies.

I am shattered and been sleeping loads, we spoke to our eldest the other night he is 13 and hearing bits and pieces I felt we needed to tell him the easiest version so we didnt frighten him and he knew what was happening.

I am scared witless, part of me would be content knowing I could stop fighting and just fall asleep, but another part of me is so frightened of the pain, I have watched loved ones with cancer and it is not the nicest thing to endure.

On the plus side my looney psychiatrist phoned me today (my OT rung me this morning to see how the liver scan went, and when I told her she said she was going to email my psychiatrist and give him my mob number as my houseline is down at the minute) saying he was sorry to hear my news and hopes things work out okay but he will talk to me next Tuesday !!! I honestly think we have spoke in a whole 13months about 45mins tops. so feck knows what he is going to say not as if words can change anything.

anyway I will be intouch if I find out anymore news xx Thanks Zaf for your thoughts xx

[Zaf]

try to take one day at a time if you possibly can and that we are all with you to help if you need it xx

[Munchroom]

 &*( Thinking of you Karen xx

[Sweetpea]

Thinking of you.

Take care


S x

[Desperado99]

Thinking of you Karian xx

[Glen53]

You will be in my thoughts and I hope the outcome is positive.